Pediatri Uygulamalarında Çocukluk Çağı Kronik Hastalıklarının Yönetimine İlişkin Gelişimsel Perspektif
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Olgularla Literatür İncelemesi
CİLT: 37 SAYI: 1
P: 126 - 134
Ocak 2026

Pediatri Uygulamalarında Çocukluk Çağı Kronik Hastalıklarının Yönetimine İlişkin Gelişimsel Perspektif

Gazi Med J 2026;37(1):126-134
Bilgi mevcut değil.
Bilgi mevcut değil
Alındığı Tarih: 07.12.2024
Kabul Tarihi: 12.04.2025
Online Tarih: 19.01.2026
Yayın Tarihi: 19.01.2026
E-Pub Tarihi: 24.11.2025
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ÖZ

Pediatri uygulamalarında kronik sağlık sorunlarının yönetimi, optimum gelişim için bütüncül ve sistematik bir yaklaşım gerektirir. Çeşitli kronik sağlık sorunlarına ilişkin kronik hastalık ve sağlık yönetimi üzerine önemli bir literatür bulunmasına rağmen, bu savunmasız çocuk gruplarının en iyi gelişim potansiyeline ulaşması için bütüncül yaklaşıma ihtiyaç vardır. Bu makale, çocuklarda kronik sağlık sorunlarının gelişimsel ve davranışsal etkilerini, hastaneye yatış sürecini ve klinik yönetimini incelemekte ve özgül öneriler sunmaktadır. Kronik sağlık sorunları, çocukların gelişimini ve davranışlarını hem etkiler hem de bunlardan etkilenir. Klinisyenler, kronik sorunların tüm aile üyelerini etkilediğinin bilincinde olmalıdır. Hastalığın olumsuz etkilerini en aza indirmek için, çocukların ve ailelerinin karşılanmamış ihtiyaçları belirlenmeli ve hastalık ve hastanede yatış süresince destekleyici yaklaşımlar uygulanmalıdır. Bakım koordinasyonu, gelişimsel-davranışsal işlevselliğin belirlenmesi, ailenin güçlü yönlerinin değerlendirilmesi, hastalık hakkında eğitim ve okul planlaması gibi belirli pediatrik roller, kronik sorunların etkili yönetimi için standart pediatrik bakıma entegre edilmelidir.

Anahtar Kelimeler:
Anahtar kelimeler: Kronik hastalıklar, çocuk gelişimi, pediatri uygulamaları, hastaneye yatış, klinik yönetim

Kaynaklar

1
van der Lee JH, Mokkink LB, Grootenhuis MA, Heymans HS, Offringa M. Definitions and measurement of chronic health conditions in childhood: a systematic review. JAMA. 2007; 297: 2741-51.
2
Thyen U, Perrin JM. Chronic health conditions. In: Carey WB, Crocker AC, Elias ER, Feldman HM, Coleman WL, editors. Developmental and Behavioral Pediatrics. 4th ed. Philadelphia: Saunders Elsevier; 2009. Available from: https://www.elsevier.com/books/developmental-and-behavioral-pediatrics/9781416033707.
3
World Health Organization. International classification of functioning, disability and health: ICF. Geneva: World Health Organization; 2001. Available from: https://www.who.int/standards/classifications/international-classification-of-functioning-disability-and-health.
4
Blackman JA, Gurka MJ, Gurka KK, Oliver MN. Emotional, developmental and behavioural co-morbidities of children with chronic health conditions. J Paediatr Child Health. 2011; 47: 742-7.
5
van Dyck PC, Kogan MD, McPherson MG, Weissman GR, Newacheck PW. Prevalence and characteristics of children with special health care needs. Arch Pediatr Adolesc Med. 2004; 158: 884-90.
6
Macdonald M, Lang A, Savage E, Chappe V, Murphy A, Gosse F, et al. Working to have a normal life with cystic fibrosis in an adherence-driven health care system. Respir Care. 2019; 64: 945-52.
7
Smith S, Tallon M, Clark C, Jones L, Morelius E. “You never exhale fully because you’re not sure what’s next”: parents’ experiences of stress caring for children with chronic conditions. Front Pediatr. 2022; 10: 902655.
8
Rinaldi Carpenter D, Narsavage GL. One breath at a time: living with cystic fibrosis. J Pediatr Nurs. 2004; 19: 25-32.
9
Özmert EN. Gelişimsel pediatri. In: Yurdakök M, editor. Yurdakök Pediatri. Ankara: Güneş Tıp Kitabevi; 2017. Available from: https://www.guneskitabevi.com/yurdakok-pediatri.
10
Blackman JA, Conaway MR. Developmental, emotional and behavioral co-morbidities across the chronic health condition spectrum. J Pediatr Rehabil Med. 2013; 6: 63-71.
11
Tluczek A, Grob R, Warne E, Van Gorp S, Greene L, Homa K. Parenting children with cystic fibrosis: developmental acquisition of expertise. J Dev Behav Pediatr. 2022; 43: 463-72.
12
İnal N, Pekcanlar A. Chronic illness, hospitalization and child. DEÜ Tıp Fakültesi Dergisi. 2008;22(2):99–105. Available from: https://dergipark.org.tr/en/pub/deutipfak/issue/4683/64162.
13
Fraser LK, Murtagh FE, Aldridge J, Sheldon T, Gilbody S, Hewitt C. Health of mothers of children with a life-limiting condition: a comparative cohort study. Arch Dis Child. 2021; 106: 987-93.
14
Çelen Yoldaş T, Özdel S, Karakaya J, Bülbül M. Developmental and behavioral problems of preschool-age children with chronic rheumatic diseases. J Dev Behav Pediatr. 2022; 43: e162-9.
15
Barker MM, Beresford B, Fraser LK. Incidence of anxiety and depression in children and young people with life-limiting conditions. Pediatr Res. 2023; 93: 2081-90.
16
Fitzgerald C, George S, Somerville R, Linnane B, Fitzpatrick P. Caregiver burden of parents of young children with cystic fibrosis. J Cyst Fibros. 2018; 17: 125-31.
17
Sabbeth BF, Leventhal JM. Marital adjustment to chronic childhood illness: a critique of the literature. Pediatrics. 1984; 73: 762-8.
18
Deavin A, Greasley P, Dixon C. Children’s perspectives on living with a sibling with a chronic illness. Pediatrics. 2018; 142: e20174151.
19
Woodgate RL, Edwards M, Ripat JD, Rempel G, Johnson SF. Siblings of children with complex care needs: their perspectives and experiences of participating in everyday life. Child Care Health Dev. 2016; 42: 504-12.
20
Martinez B, Pechlivanoglou P, Meng D, Traubici B, Mahood Q, Korczak D, et al. Clinical health outcomes of siblings of children with chronic conditions: a systematic review and meta-analysis. J Pediatr. 2022; 250: 83-92.
21
Rauch DA; Committee on Hospital Care; Section on Hospital Medicine. Physician’s role in coordinating care of hospitalized children. Pediatrics. 2018; 142: e20181503.
22
Perrin EC, Shipman D. Hospitalization, surgery, and medical and dental procedures. In: Carey WB, Crocker AC, Elias ER, Feldman HM, Coleman WL, editors. Developmental and Behavioral Pediatrics. 4th ed. Philadelphia: Saunders Elsevier; 2009. Available from: https://www.elsevier.com/books/developmental-and-behavioral-pediatrics/9781416033707.
23
Atay G, Eras Z, Ertem İ. Developmental support of children during their hospitalizations. J Child. 2011; 11: 1-4.
24
Gursky B. The effect of educational interventions with siblings of hospitalized children. J Dev Behav Pediatr. 2007; 28: 392-8.
25
Armstrong FD. Neurodevelopment and chronic illness: mechanisms of disease and treatment. Ment Retard Dev Disabil Res Rev. 2006; 12: 168-73.
26
Mueller SC, Maheu FS, Dozier M, Peloso E, Mandell D, Leibenluft E, et al. Early-life stress is associated with impairment in cognitive control in adolescence: an fMRI study. Neuropsychologia. 2010; 48: 3037-44.
27
Committee on Hospital Care; Institute for Patient- and Family-Centered Care. Patient- and family-centered care and the pediatrician’s role. Pediatrics. 2012; 129: 394-404..
28
Brannon GE, Ray MR, Lark P, Kindratt TB. Influence of pediatric patients’ developmental or chronic health condition status as a predictor of parents’ perceptions of patient- and family-centered care. Health Commun. 2022; 37: 880-8.
29
Nijhof SL, Vinkers CH, van Geelen SM, Duijff SN, Achterberg EJM, van der Net J, et al. Healthy play, better coping: the importance of play for the development of children in health and disease. Neurosci Biobehav Rev. 2018; 95: 421-9.
30
Romito B, Jewell J, Jackson M; AAP Committee on hospital care; association of child life professionals. Child life services. Pediatrics. 2021; 147: e2020040261.
31
Caggiano G, Brunetti LIG, Ho K, Piovani A, Quaranta A. Hospital school program: the right to education for long-term care children. Int J Environ Res Public Health. 2021; 18: 11435.
32
World Health Organization. WHO issues new guidelines on the management of chronic pain in children. Geneva: World Health Organization; 2021. Available from: https://www.who.int/news/item/01-02-2021-who-issues-new-guidelines-on-the-management-of-chronic-pain-in-children
33
Lerner CF, Klitzner TS. The medical home at 50: are children with medical complexity the key to proving its value? Acad Pediatr. 2017; 17: 581-8.
34
Council on Children with Disabilities; Medical Home Implementation Project Advisory Committee. Patient- and family-centered care coordination: a framework for integrating care for children and youth across multiple systems. Pediatrics. 2014; 133: e1451-60.
35
Rhodes A, Sciberras E, Oberklaid F, South M, Davies S, Efron D. Unmet developmental, behavioral, and psychosocial needs in children attending pediatric outpatient clinics. J Dev Behav Pediatr. 2012; 33: 469-78.
36
Bradshaw S, Bem D, Shaw K, Taylor B, Chiswell C, Salama M, et al. Improving health, wellbeing and parenting skills in parents of children with special health care needs and medical complexity - a scoping review. BMC Pediatr. 2019; 19: 301.
37
Stenberg U, Haaland-Øverby M, Koricho AT, Trollvik A, Kristoffersen LR, Dybvig S, et al. How can we support children, adolescents and young adults in managing chronic health challenges? A scoping review on the effects of patient education interventions. Health Expect. 2019; 22: 849-62.
38
Quaye AA, Coyne I, Söderbäck M, Hallström IK. Children’s active participation in decision-making processes during hospitalisation: an observational study. J Clin Nurs. 2019; 28: 4525-37.